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Dataset Information

Genes for Good: Engaging the Public in Genetics Research via Social Media.


ABSTRACT: The Genes for Good study uses social media to engage a large, diverse participant pool in genetics research and education. Health history and daily tracking surveys are administered through a Facebook application, and participants who complete a minimum number of surveys are mailed a saliva sample kit ("spit kit") to collect DNA for genotyping. As of March 2019, we engaged >80,000 individuals, sent spit kits to >32,000 individuals who met minimum participation requirements, and collected >27,000 spit kits. Participants come from all 50 states and include a diversity of ancestral backgrounds. Rates of important chronic health indicators are consistent with those estimated for the general U.S. population using more traditional study designs. However, our sample is younger and contains a grea

SUBMITTER: Brieger K 

PROVIDER: S-EPMC6612519 | biostudies-literature | 2019 Jul

REPOSITORIES: biostudies-literature