Parental perspectives on retention and secondary use of neonatal dried bloodspots: a Dutch mixed methods study.

ABSTRACT:

Background

Neonatal bloodspot screening (NBS) identifies conditions to offer early intervention and minimize irreversible damage. NBS policies guide a comprehensive system including processes for storage of neonatal dried blood spots (NDBS). NDBS retention and secondary use policies have been subject of public debates internationally, suggesting that the public's perceptions of NDBS policy are not always on par with existing policies. The current study aims to provide insight in relevant factors for new parents in the Netherlands regarding retention and secondary use of NDBS. These factors can be taken into account when developing or updating NDBS policies.

Methods

A mixed methods design was used combining an online survey (n = 753), focus groups (6 groups, 37 participants),

SUBMITTER: Jansen ME 

PROVIDER: S-EPMC6615086 | biostudies-literature | 2019 Jul

REPOSITORIES: biostudies-literature