Assessment of Self-reported Prognostic Expectations of People Undergoing Dialysis: United States Renal Data System Study of Treatment Preferences (USTATE).

ABSTRACT:

Importance

Prognostic understanding can shape patients' treatment goals and preferences. Patients undergoing dialysis in the United States have limited life expectancy and may receive end-of-life care directed at life extension. Little is known about their prognostic expectations.

Objective

To understand the prognostic expectations of patients undergoing dialysis and how these relate to care planning, goals, and preferences.

Design, setting, and participants

Cross-sectional survey study of 996 eligible patients treated with regular dialysis at 31 nonprofit dialysis facilities in 2 metropolitan areas (Seattle, Washington, and Nashville, Tennessee) between April 2015 and October 2018. After a pilot phase, 1434 eligible patients were invited to participate (response rate

SUBMITTER: O'Hare AM 

PROVIDER: S-EPMC6618699 | biostudies-literature | 2019 Oct

REPOSITORIES: biostudies-literature