Measuring the quality of life of family carers of people with dementia: development and validation of C-DEMQOL.

ABSTRACT:

Purpose

We aimed to address gaps identified in the evidence base and instruments available to measure the quality of life (QOL) of family carers of people with dementia, and develop a new brief, reliable, condition-specific instrument.

Methods

We generated measurable domains and indicators of carer QOL from systematic literature reviews and qualitative interviews with 32 family carers and 9 support staff, and two focus groups with 6 carers and 5 staff. Statements with five tailored response options, presenting variation on the QOL continuum, were piloted (n = 25), pre-tested (n = 122) and field-tested (n = 300) in individual interviews with family carers from North London and Sussex. The best 30 questions formed the C-DEMQOL questionnaire, which was evaluated for usability,

SUBMITTER: Brown A 

PROVIDER: S-EPMC6620239 | biostudies-literature | 2019 Aug

REPOSITORIES: biostudies-literature