Sharing in care: engaging care partners in the care and communication of breast cancer patients.

ABSTRACT:

Purpose

Family is often overlooked in cancer care. We developed a patient-family agenda setting intervention to engage family in cancer care communication.

Methods

We conducted a pilot randomized controlled trial (NCT03283553) of patients on active treatment for breast cancer and their family "care partner." Intervention dyads (n = 69) completed a self-administered checklist to clarify care partner roles, establish a shared visit agenda, and facilitate MyChart patient portal access. Control dyads (n = 63) received usual care. We assessed intervention acceptability and initial effects from post-visit surveys and MyChart utilization at 6 weeks.

Results

At baseline, most patients (89.4%) but few care partners (1.5%) were registered for MyChart. Most patients (79.4%) want

SUBMITTER: Wolff JL 

PROVIDER: S-EPMC6640103 | biostudies-literature | 2019 Aug

REPOSITORIES: biostudies-literature