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Dataset Information

SUDEP in the North American SUDEP Registry: The full spectrum of epilepsies.


ABSTRACT:

Objective

To obtain medical records, family interviews, and death-related reports of sudden unexpected death in epilepsy (SUDEP) cases to better understand SUDEP.

Methods

All cases referred to the North American SUDEP Registry (NASR) between October 2011 and June 2018 were reviewed; cause of death was determined by consensus review. Available medical records, death scene investigation reports, autopsy reports, and next-of-kin interviews were reviewed for all cases of SUDEP. Seizure type, EEG, MRI, and SUDEP classification were adjudicated by 2 epileptologists.

Results

There were 237 definite and probable cases of SUDEP among 530 NASR participants. SUDEP decedents had a median age of 26 (range 1-70) years at death, and 38% were female. In 143 with sufficient informatio

SUBMITTER: Verducci C 

PROVIDER: S-EPMC6656646 | biostudies-literature | 2019 Jul

REPOSITORIES: biostudies-literature