Patients' willingness to share digital health and non-health data for research: a cross-sectional study.

ABSTRACT:

Background

Patients generate large amounts of digital data through devices, social media applications, and other online activities. Little is known about patients' perception of the data they generate online and its relatedness to health, their willingness to share data for research, and their preferences regarding data use.

Methods

Patients at an academic urban emergency department were asked if they would donate any of 19 different types of data to health researchers and were asked about their views on data types' health relatedness. Factor analysis was used to identify the structure in patients' perceptions of willingness to share different digital data, and their health relatedness.

Results

Of 595 patients approached 206 agreed to participate, of whom 104 agreed t

SUBMITTER: Seltzer E 

PROVIDER: S-EPMC6686530 | biostudies-literature | 2019 Aug

REPOSITORIES: biostudies-literature