Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance.

ABSTRACT:

Objectives

To conduct a UK-wide survey of young people who have experienced cancer, carers and professionals, to identify and prioritise research questions to inform decisions of research funders and support the case for research with this unique cancer population.

Design

James Lind Alliance Priority Setting Partnership.

Setting

UK health service and community.

Methods

A steering group oversaw the initiative and partner organisations were recruited. Unanswered questions were collected in an online survey. Evidence searching verified uncertainties. An interim survey was used to rank questions prior to a final prioritisation workshop.

Participants

Young people aged 13-24 years with a current or previous cancer diagnosis, their families, friends, partners a

SUBMITTER: Aldiss S 

PROVIDER: S-EPMC6688702 | biostudies-literature | 2019 Aug

REPOSITORIES: biostudies-literature