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Patient and public involvement in dementia research in the European Union: a scoping review.


ABSTRACT:

Background

Internationally, there is a drive to involve patients and the public in health research, due to recognition that patient and public involvement (PPI) may increase the impact and relevance of health research. This scoping review describes the extent and nature of PPI in dementia research in the European Union (EU) and summarises: (i) how PPI is carried out; and (ii) the impact of PPI on people living with dementia and the public, researchers, and the research process.

Methods

Relevant studies were identified by searches in electronic reference databases and then filtered by two reviewers independently. Eligibility criteria for included studies were: (i) people living with dementia and/or care partners; (ii) PPI activity in dementia research conducted in the Europea

SUBMITTER: Miah J 

PROVIDER: S-EPMC6694462 | biostudies-literature | 2019 Aug

REPOSITORIES: biostudies-literature