Population-based surveillance of congenital heart defects among adolescents and adults: surveillance methodology.

ABSTRACT:

Background

Improved treatment of congenital heart defects (CHDs) has increased survival of persons with CHDs; however, no U.S. population-based systems exist to assess prevalence, healthcare utilization, or longer-term outcomes among adolescents and adults with CHDs.

Methods

Novel approaches identified individuals aged 11-64 years who received healthcare with ICD-9-CM codes for CHDs at three sites: Emory University in Atlanta, Georgia (EU), Massachusetts Department of Public Health (MA), New York State Department of Health (NY) between January 1, 2008 (2009 for MA) and December 31, 2010. Case-finding sources included outpatient clinics; Medicaid and other claims data; and hospital inpatient, outpatient, and emergency visit data. Supplemental information came from state vital

SUBMITTER: Glidewell J 

PROVIDER: S-EPMC6701175 | biostudies-literature | 2018 Nov

REPOSITORIES: biostudies-literature