From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients.

ABSTRACT:

Background

Current health care systems are rarely designed to meet the needs of people living with chronic conditions. However, some patients and informal caregivers are not waiting for the health care system to redesign itself. These individuals are sometimes referred to as e-patients. The first generation of e-patients used the internet for finding information and for communicating with peers. Compared with the first generation, the second generation of e-patients collects their own health data and appears to be more innovative.

Objective

The aim of this study was to describe the second generation of e-patients through exploration of their active engagement in their self-care and health care.

Methods

Semistructured interviews were conducted with 10 patients with chr

SUBMITTER: Scott Duncan T 

PROVIDER: S-EPMC6714498 | biostudies-literature | 2019 Aug

REPOSITORIES: biostudies-literature