Satisfaction, disappointment and regret surrounding fertility preservation decisions in the paediatric and adolescent cancer population.

ABSTRACT:

Purpose

With over 80% of paediatric and adolescent cancer patients surviving into adulthood, quality-of-life issues such as future fertility are increasingly important. However, little is known about regret around decisions to pursue or forgo fertility preservation (FP). We investigated the risk of decision regret in families involved in making a FP decision and explored contributive factors.

Methods

Parents and patients ≥ 15 years were invited to participate. Participants completed a 10-item survey, including a validated Decision Regret Scale. Scores ≥ 30 indicated high regret. Free-text response items allowed participants to provide reasons for satisfaction or regret.

Results

A total of 108 parents and 30 patients participated. Most (81.4%) reported low regret (mean

SUBMITTER: Jayasuriya S 

PROVIDER: S-EPMC6730729 | biostudies-literature | 2019 Sep

REPOSITORIES: biostudies-literature