Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.

ABSTRACT:

Background

Numerous frameworks for supporting, evaluating and reporting patient and public involvement in research exist. The literature is diverse and theoretically heterogeneous.

Objectives

To identify and synthesize published frameworks, consider whether and how these have been used, and apply design principles to improve usability.

Search strategy

Keyword search of six databases; hand search of eight journals; ancestry and snowball search; requests to experts.

Inclusion criteria

Published, systematic approaches (frameworks) designed to support, evaluate or report on patient or public involvement in health-related research.

Data extraction and synthesis

Data were extracted on provenance; collaborators and sponsors; theoretical basis; lay input; intend

SUBMITTER: Greenhalgh T 

PROVIDER: S-EPMC6737756 | biostudies-literature | 2019 Aug

REPOSITORIES: biostudies-literature