Understanding parental perspectives on outcomes following paediatric encephalitis: A qualitative study.

ABSTRACT:

Background

Encephalitis, characterised as inflammation of the brain tissue, is an important cause of acquired brain injury in children. Objective clinical outcomes vary significantly between affected patients, however they do not always correlate with quality of life as reported by parents. The aim of this study was to explore how parents experience and interpret outcomes in relation to their child who has been affected by encephalitis.

Methods

Data were derived from in-depth, semi-structured interviews, with 15 parents of 12 children and young people affected by encephalitis. Paediatric cases were identified from the retrospective arm of the research programme 'ENCEPH-UK-Understanding and Improving the Outcome of Encephalitis', and from the prospective UK childhood meningit

SUBMITTER: Lemon J 

PROVIDER: S-EPMC6746349 | biostudies-literature | 2019

REPOSITORIES: biostudies-literature