The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review.

ABSTRACT: Objective: The aim of this study is to report the benefits and burdens of palliative research participation on children, siblings, parents, clinicians, and researchers. Background: Pediatric palliative care requires research to mature the science and improve interventions. A tension exists between the desire to enhance palliative and end-of-life care for children and their families and the need to protect these potentially vulnerable populations from untoward burdens. Methods: Systematic review followed PRISMA guidelines with prepared protocol registered as PROSPERO #CRD42018087304. MEDLINE, CINAHL, PsycINFO, EMBASE, Scopus, and The Cochrane Library were searched (2000-2017). English-language studies depicting the benefits or burdens of palliative care or end-of-life research participation

SUBMITTER: Weaver MS 

PROVIDER: S-EPMC6755658 | biostudies-literature | 2019 Aug

REPOSITORIES: biostudies-literature