Health and wellbeing of people with intellectual disability in New South Wales, Australia: a data linkage cohort.

ABSTRACT:

Purpose

People with intellectual disability (ID) experience high rates of physical and mental health problems, while access to appropriate healthcare is often poor. This cohort was established to develop an epidemiological profile related to the health, health service use, disability services, mortality and corrective services records of people with ID.

Participants

The cohort contains 92 542 people with ID (40% females) with a median age of 23 years (IQR: 12-43 years) and 2 004 475 people with a neuropsychiatric or developmental disorder diagnosis (50% females) with a median age of 51 years (IQR: 29-73 years) from New South Wales, Australia. The whole sample contains records for 2 097 017 individuals with most data sets spanning financial years 1 July 2001 to 30 June 2016.

SUBMITTER: Reppermund S 

PROVIDER: S-EPMC6773320 | biostudies-literature | 2019 Sep

REPOSITORIES: biostudies-literature