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ABSTRACT: Background
Specialty societies, such as the International Society on Thrombosis and Haemostasis (ISTH), are a key source of support for clinical and scientific communities, through the provision of educational activities, tools, and resources to support evidence-based care and high-quality, relevant basic science and clinical research.Objective
The aim of this study was to identify areas where the thrombosis and hemostasis (T&H) community is facing challenges and could benefit from the support of ISTH.Methods
A 3-phase, mixed-methods study consisting of semistructured individual interviews (phase 1), an online survey (phase 2), and discussion groups (phase 3) was conducted on the challenges experienced by the T&H community. Participants included physicians, clinical and basic science researchers, residents, fellows, students, and industry representatives. Qualitative data were analyzed using thematic analysis. Quantitative data were analyzed using frequency tables and chi-squares.Results
The study included 468 participants in interviews (n = 45), surveys (n = 404), and discussion groups (n = 19). Nine themes emerged that describe areas where the T&H community may benefit from additional support. Three areas were related to diagnosis and testing: thrombosis risk assessment, genetic testing, and diagnosis of von Willebrand disease (VWD). Another 3 were related to treatment decision making: use of anticoagulants with certain patients, preventive treatments in bleeding disorders, and VWD treatment. The remaining 3 were related to research: collaboration with/among researchers, collaboration between teams to collect data from human subjects, and promotion of basic science research.Conclusions
This study provides a comprehensive picture of priorities within the T&H community, which should inform the ISTH in its future interventions, including educational offerings and networking opportunities.
SUBMITTER: Murray S
PROVIDER: S-EPMC6781915 | biostudies-literature | 2019 Oct
REPOSITORIES: biostudies-literature
Murray Suzanne S McLintock Claire C Lazure Patrice P Peniuta Morgan M Schulman Sam S Rezende Suely M SM Morrissey James H JH Reiser Thomas T Pabinger Ingrid I
Research and practice in thrombosis and haemostasis 20190628 4
<h4>Background</h4>Specialty societies, such as the International Society on Thrombosis and Haemostasis (ISTH), are a key source of support for clinical and scientific communities, through the provision of educational activities, tools, and resources to support evidence-based care and high-quality, relevant basic science and clinical research.<h4>Objective</h4>The aim of this study was to identify areas where the thrombosis and hemostasis (T&H) community is facing challenges and could benefit fr ...[more]