Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review.

ABSTRACT: Background: Multiple factors, including experiences with unethical research practices, have made some Indigenous groups in the United States and Canada reticent to participate in potentially beneficial health-related research. Yet, Indigenous peoples have also expressed a willingness to participate in research when certain conditions related to the components of data management-including data collection, analysis, security and storage, sharing, dissemination, and withdrawal-are met. A scoping review was conducted to better understand the terms of data management employed in health-related research involving Indigenous communities in the United States and Canada. Methods: PubMed, Embase, PsychINFO, and Web of Science were searched using terms related to the populations and topics of interes

SUBMITTER: Woodbury RB 

PROVIDER: S-EPMC6796238 | biostudies-literature | 2019

REPOSITORIES: biostudies-literature