Frequency and format of clinical trial results dissemination to patients: a survey of authors of trials indexed in PubMed.

ABSTRACT:

Objective

Dissemination of research findings is central to research integrity and promoting discussion of new knowledge and its potential for translation into practice and policy. We investigated the frequency and format of dissemination to trial participants and patient groups.

Design

Survey of authors of clinical trials indexed in PubMed in 2014-2015.

Results

Questionnaire emailed to 19 321 authors; 3127 responses received (16%). Of these 3127 trials, 2690 had human participants and 1818 enrolled individual patients. Among the 1818, 498 authors (27%) reported having disseminated results to participants, 238 (13%) planned to do so, 600 (33%) did not plan to, 176 (10%) were unsure and 306 (17%) indicated 'other' or did not answer. Of the 498 authors who had disseminat

SUBMITTER: Schroter S 

PROVIDER: S-EPMC6803145 | biostudies-literature | 2019 Oct

REPOSITORIES: biostudies-literature