Using telehealth in motor neuron disease to increase access to specialist multidisciplinary care: a UK-based pilot and feasibility study.

ABSTRACT:

Objectives

Care of patients with motor neuron disease (MND) in a specialist, multidisciplinary clinic is associated with improved survival, but access is not universal. We wanted to pilot and establish the feasibility of a definitive trial of a novel telehealth system (Telehealth in Motor neuron disease, TiM) in patients with MND.

Design

An 18-month, single-centre, mixed-methods, randomised, controlled pilot and feasibility study.

Intervention

TiM telehealth plus usual care versus usual care.

Setting

A specialist MND care centre in the UK.

Participants

Patients with MND and their primary informal carers.

Primary and secondary outcome measures

Recruitment, retention and data collection rates, clinical outcomes including participant quality of life

SUBMITTER: Hobson EV 

PROVIDER: S-EPMC6830633 | biostudies-literature | 2019 Oct

REPOSITORIES: biostudies-literature