European Network of Pregnancy Registers in Rheumatology (EuNeP)-an overview of procedures and data collection.

ABSTRACT:

Background

The collaborative initiative of the European Network of Pregnancy Registers in Rheumatology (EuNeP) aims to combine data available in nationwide pregnancy registers to increase knowledge on pregnancy outcomes in women with inflammatory rheumatic diseases (IRD) and on drug safety during pregnancy and lactation. The objective of this study was to describe the similarities and differences of the member registers.

Methods

From all registers, information about their structure and design was collected, as well as which parameters regarding demographics, maternal outcomes, treatment, course and outcome of pregnancy, and development of the child were available in the respective datasets. Furthermore, the current recruitment status was reported.

Results

The four reg

SUBMITTER: Meissner Y 

PROVIDER: S-EPMC6854642 | biostudies-literature | 2019 Nov

REPOSITORIES: biostudies-literature