Scleroderma Patient-centered Intervention Network-Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trial.

ABSTRACT:

Objectives

The Scleroderma Patient-centered Intervention Network-Scleroderma Support group Leader EDucation (SPIN-SSLED) Programme was designed to improve confidence and self-efficacy and to reduce burden for support group leaders. Objectives were to (1) evaluate feasibility of programme delivery, including required resources, management issues and scientific aspects (eg, performance of outcome measures) and (2) assess user satisfaction and identify any modifications needed to improve programme content or delivery based on participant feedback.

Design

Non-randomised feasibility trial.

Setting

North American patient organisations.

Participants

Current support group leaders or potential new leaders referred by patient organisations.

Intervention

The progra

SUBMITTER: Thombs BD 

PROVIDER: S-EPMC6858260 | biostudies-literature | 2019 Nov

REPOSITORIES: biostudies-literature