Patients' and researchers' experiences with a patient board for a clinical trial on urinary tract infections.

ABSTRACT:

Background

Patient and public involvement (PPI) has become an essential part of the design, conduct, and dissemination of research. While researchers who employed PPI mainly report on the positive aspects, in practice PPI is still an exception in clinical trials in Germany. There are specific challenges in the process of involvement that can jeopardize the conduct of involvement. The aim of our study was to analyze the experience of patients and researchers with PPI in a clinical trial in Germany, so we could learn more about potential challenges and how they could be addressed.

Methods

We established a patient board for a randomized controlled trial on urinary tract infections, where patients and researchers regularly met to discuss relevant aspects of the trial. Minutes we

SUBMITTER: Schilling I 

PROVIDER: S-EPMC6882213 | biostudies-literature | 2019

REPOSITORIES: biostudies-literature