Cross-sectional analysis of the Myasthenia Gravis Patient Registry: Disability and treatment.

ABSTRACT:

Introduction

The Myasthenia Gravis Patient Registry (MGR) is a voluntary, patient-submitted database dedicated to improve understanding of care/burden of myasthenia gravis (MG).

Methods

In this study we present analyses of baseline records through July 2017 (n = 1140) containing data on the MG-Activities of Daily Living (MG-ADL) and the MG 15-item Quality of Life (MG-QOL15) instruments, two validated scales assessing quality of life in MG patients at sign-up into the MGR.

Results

Most registrants reported moderate to severe impairment of health-related quality of life, with a median MG-ADL score of 6 and a median MG-QOL15 score of 21. Seventy-one percent of the patients had received pyridostigmine. Corticosteroids, mycophenolate mofetil, and azathioprine were the most

SUBMITTER: Cutter G 

PROVIDER: S-EPMC6899582 | biostudies-literature | 2019 Dec

REPOSITORIES: biostudies-literature