"It Makes People Uneasy, but It's Necessary. #BTSM": Using Twitter to Explore Advance Care Planning among Brain Tumor Stakeholders.

ABSTRACT: Background: Advance care planning (ACP) often occurs too late in the disease course of those who are affected by brain tumors. Furthermore, the perspectives of brain tumor stakeholders on ACP are not well described. We reviewed a social media tweet chat to understand barriers to ACP experienced by brain tumor stakeholders. Methods: We used qualitative methods to analyze a tweet chat (real-time virtual discussion) of brain tumor stakeholders. The one-hour tweet chat was hosted by Brain Tumor Social Media chat (@BTSMchat), a patient-run Twitter community, in January 2018. Participants reflected on four questions about ACP by including the hashtag "#BTSM" in tweets. Unique tweets and stakeholder type (i.e., patient, caregiver, advocate or organization member, clini

SUBMITTER: Cutshall NR 

PROVIDER: S-EPMC6931910 | biostudies-literature | 2020 Jan

REPOSITORIES: biostudies-literature