Paediatric neuro-oncology rehabilitation in the UK: carer and provider perspectives.

ABSTRACT:

Objective

The provision of rehabilitation services after childhood brain tumour has not been established, despite a recent parliamentary call for urgent action. This service evaluation aimed to determine what specialist paediatric neuro-oncology rehabilitation services were available across the UK at the time of the surveys and whether the needs of patients and their families were being met.

Design

Cross-sectional on-line surveys.

Participants

Survey 1: neuro-oncologist and nurse specialist members of the Children's Cancer and Leukaemia Group (CCLG) at Children's Principle Treatment Centres (PTCs) in the UK; Survey 2: parents of paediatric neuro-oncology patients belonging to The Brain Tumour Charity (TBTC) Research Involvement Network (RIN).

Results

17 of the

SUBMITTER: Treadgold B 

PROVIDER: S-EPMC6937011 | biostudies-literature | 2019

REPOSITORIES: biostudies-literature