Decisions for Long-Term Ventilation for Children. Perspectives of Family Members.

ABSTRACT: Rationale: The decision whether to initiate or forgo long-term ventilation for children can be difficult and impactful. However, little has been published on the informational and decisional needs of families facing this decision.Objectives: To assess what families with children with chronic respiratory failure and life-limiting conditions need and want for informed decision-making.Methods: English- and Spanish-speaking parents who were facing (contemporaneous decision makers) or had previously faced (former decision makers) a decision regarding invasive or noninvasive long-term ventilation for their children were recruited using convenience sampling. Patients who were older and cognitively capable also were invited to participate. We performed semistructured interview

SUBMITTER: Edwards JD 

PROVIDER: S-EPMC6944342 | biostudies-literature | 2020 Jan

REPOSITORIES: biostudies-literature