State of the art and a mixed-method personalized approach to assess patient perceptions on medical record sharing and sensitivity.

ABSTRACT:

Objective

Sensitive health information possesses risks, such as stigma and discrimination, when disclosed. Few studies have used a patient's own electronic health records (EHRs) to explore what types of information are considered sensitive andhow such perceptions affect data sharing preferences. After a systematic literature review, we designed and piloted a mixed-method approach that employs an individual's own records to assess content sensitivity and preferences for granular data sharing for care and research.

Methods

A systematic literature review of methodologies employed to assess data sharing willingness and perceptions on data sensitivity was conducted. A methodology was designed to organize and categorize sensitive health information from EHRs. Patients were asked p

SUBMITTER: Soni H 

PROVIDER: S-EPMC6952579 | biostudies-literature | 2020 Jan

REPOSITORIES: biostudies-literature