The importance of transplant program measures: Surveys of three national patient advocacy groups.

ABSTRACT: The Scientific Registry of Transplant Recipients (SRTR) provides federally mandated program-specific transplant data to the public. Currently, there is little understanding of how different program measures are prioritized by patients in selecting a program for transplantation. This study recruited 479 transplant advocacy group members from mailing lists and social media of the National Kidney Foundation (NKF), transplant families (TF), and Transplant Recipient International Organization (TRIO). Survey participants identified how many different programs would be reasonable to consider and viewed four measures that have recently been displayed on SRTR public search result websites and six measures not recently displayed and indicated importance on a 5-point scale. Four hundred two completed

SUBMITTER: Schaffhausen CR 

PROVIDER: S-EPMC6959002 | biostudies-literature | 2018 Dec

REPOSITORIES: biostudies-literature