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Dataset Information

Attitudes toward advance care planning among persons with dementia and their caregivers.


ABSTRACT:

Objectives

To examine factors that influence decision-making, preferences, and plans related to advance care planning (ACP) and end-of-life care among persons with dementia and their caregivers, and examine how these may differ by race.

Design

Cross-sectional survey.

Setting

13 geographically dispersed Alzheimer's Disease Centers across the United States.

Participants

431 racially diverse caregivers of persons with dementia.

Measurements

Survey on "Care Planning for Individuals with Dementia."

Results

The respondents were knowledgeable about dementia and hospice care, indicated the person with dementia would want comfort care at the end stage of illness, and reported high levels of both legal ACP (e.g., living will; 87%) and informal ACP discussio

SUBMITTER: Pettigrew C 

PROVIDER: S-EPMC6962575 | biostudies-literature | 2020 May

REPOSITORIES: biostudies-literature