SMART Markers: collecting patient-generated health data as a standardized property of health information technology.

ABSTRACT: A patient-centered health system needs precise computable measurements to derive value. While validated patient-reported outcomes (PROs) are increasingly used in trials, their adoption in care remains limited and generally separated from the medical record. Further, absence of systematic processes for patient-led data submission excludes valuable data from digital devices that can potentially aid in contextualizing health status. With prior experience in developing apps for the Patient-Reported Outcomes Measurement Information System (PROMIS), we sought to make collecting patient-generated health data (PGHD) a fundamental property of health information technology at scale, and in an interoperable, standards-compliant fashion. We build upon the open SMART on FHIR (Fast Health Interoperabili

SUBMITTER: Sayeed R 

PROVIDER: S-EPMC6978521 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature