Who represents me? A patient-derived model of patient engagement via patient and family advisory councils (PFACs).

ABSTRACT:

Background

Despite increasing attention to patient and family advisory councils (PFACs), what patients who are not PFAC members expect of PFACs remains understudied. Understanding their expectations is critical if PFACs are to help health systems achieve certain outcomes (eg increased patient satisfaction with health systems).

Objective

To obtain rich insights about what patients who are not PFAC members expect of PFACs.

Design

From July to September 2018, we conducted a qualitative study using focus groups.

Setting and participants

We recruited patients and caregivers who receive their care from the Johns Hopkins Medicine Alliance for Patients (JMAP), LLC, a Medicare accountable care organization that in 2014 established a PFAC, the Beneficiary Advisory Counci

SUBMITTER: Dukhanin V 

PROVIDER: S-EPMC6978862 | biostudies-literature | 2020 Feb

REPOSITORIES: biostudies-literature