Advance care planning in glioblastoma patients: development of a disease-specific ACP program.

ABSTRACT: BACKGROUND:It is unknown if the implementation of an advance care planning (ACP) program is feasible in daily clinical practice for glioblastoma patients. We aimed to develop an ACP program and assess the preferred content, the best time to introduce such a program in the disease trajectory, and possible barriers and facilitators for participation and implementation. METHODS:A focus group with health care professionals (HCPs) and individual semi-structured interviews with patients and proxies (of both living and deceased patients) were conducted. RESULTS:All predefined topics were considered relevant by participants, including the current situation, worries/fears, (supportive) treatment options, and preferred place of care/death. Although HCPs and proxies of deceased patients indicated tha

SUBMITTER: Fritz L 

PROVIDER: S-EPMC6989589 | biostudies-literature | 2020 Mar

REPOSITORIES: biostudies-literature