Making the invisible visible: the availability and desirability of adherence data in routine CF care- findings from a national questionnaire survey.

ABSTRACT: Background: Inhaled medications for cystic fibrosis (CF) are effective but adherence is low. Clinicians find it difficult to estimate how much treatment people with CF (PWCF) take, whilst objective adherence measurement demonstrates that patients are poorly calibrated with a tendency to over-estimate actual adherence. The diagnostic approach to a PWCF with deteriorating clinical status and very low adherence is likely to be different to the approach to a deteriorating patient with optimal adherence. Access to objective adherence data in routine consultations could help to overcome diagnostic challenges for clinicians and people with CF. Attitudes of clinicians to the use and importance of routinely available adherence data is unknown. Methods: We conducted an online questionnaire survey wi

SUBMITTER: Robinson L 

PROVIDER: S-EPMC6996524 | biostudies-literature | 2019

REPOSITORIES: biostudies-literature