Visualizing an Ethics Framework: A Method to Create Interactive Knowledge Visualizations From Health Policy Documents.

ABSTRACT:

Background

Data have become an essential factor in driving health research and are key to the development of personalized and precision medicine. Primary and secondary use of personal data holds significant potential for research; however, it also introduces a new set of challenges around consent processes, privacy, and data sharing. Research institutions have issued ethical guidelines to address challenges and ensure responsible data processing and data sharing. However, ethical guidelines directed at researchers and medical professionals are often complex; require readers who are familiar with specific terminology; and can be hard to understand for people without sufficient background knowledge in legislation, research, and data processing practices.

Objective

This study a

SUBMITTER: Sleigh J 

PROVIDER: S-EPMC6996733 | biostudies-literature | 2020 Jan

REPOSITORIES: biostudies-literature