Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study.

ABSTRACT: BACKGROUND:Advancements in treatment have contributed to increased survivorship among children with sickle cell disease (SCD). Increased transition readiness, encompassing disease knowledge and self-management skills before transfer to adult care, is necessary to ensure optimal health outcomes. The Sickle Cell Transition E-Learning Program (STEP) is a public, Web-based, 6-module tool designed to increase transition readiness for youth with SCD. OBJECTIVE:The objective of our study was to investigate the participation rate of youth with SCD in STEP and its association with transition readiness. METHODS:This was a single-center, Institution Review Board-approved, retrospective cohort review. A total of 183 youths with SCD, aged between 12 and 15 years, were offered STEP as an adjunct to in-c

SUBMITTER: Saulsberry AC 

PROVIDER: S-EPMC6996770 | biostudies-literature | 2020 Jan

REPOSITORIES: biostudies-literature