Self-Management Characterization for Families of Children With Medical Complexity and Their Social Networks: Protocol for a Qualitative Assessment.

ABSTRACT: BACKGROUND:Children with medical complexity (CMC) present rewarding but complex challenges for the health care system. Transforming high-quality care practices for this population requires multiple stakeholders and development of innovative models of care. Importantly, care coordination requires significant self-management by families in home- and community-based settings. Self-management often requires that families of CMC rely on vast and diverse social networks, encompassing both online and offline social relationships with individuals and groups. The result is a support network surrounding the family to help accomplish self-management of medical tasks and care coordination. OBJECTIVE:The goal of this study is to use a theoretically driven perspective to systematically elucidate the ran

SUBMITTER: Valdez RS 

PROVIDER: S-EPMC7005691 | biostudies-literature | 2020 Jan

REPOSITORIES: biostudies-literature