Adolescents' and Parents' Genomic Testing Decisions: Associations With Age, Race, and Sex.

ABSTRACT:

Purpose

Adolescents will increasingly be involved in decisions about the return of genomic results. We examined adolescents' and parents' decisions about learning actual genomic research results for the adolescent and whether choices were associated with participants' demographic factors.

Methods

Adolescents aged between 13 and 17 years and a parent (dyads) were recruited through flyers, social media, employee emails, and clinic visits at a pediatric hospital. Dyads used a decision tool to independently choose the categories of conditions they wanted to learn about the adolescent. They then came together to discuss their independent decisions and make final joint decisions. Conditions were categorized by preventability, treatability, adult-onset conditions, and carrier statu

SUBMITTER: Myers MF 

PROVIDER: S-EPMC7007858 | biostudies-literature | 2020 Mar

REPOSITORIES: biostudies-literature