Parent-reported outcomes in young children with disorders/differences of sex development.

ABSTRACT:

Background

There is a paucity of tools that can be used in routine clinical practice to assess the psychosocial impact of Disorders/Differences of Sex Development (DSD) on parents and children.

Objective

To evaluate the use of short Parent Self-Report and Parent Proxy-Report questionnaires that can be used in the outpatient setting.

Methods

Previously validated DSD-specific and generic items were combined to develop a Parent Self-Report questionnaire and a Parent Proxy-Report questionnaire for children under 7 years. Of 111 children approached at one tertiary paediatric hospital, the parents of 95 children (86%) with DSD or other Endocrine conditions completed these questionnaires.

Results

Questionnaires took under 10 min to complete and were found to be easy t

SUBMITTER: Ali SR 

PROVIDER: S-EPMC7020572 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature