Public reactions to direct-to-consumer genetic health tests: A comparison across the US, UK, Japan and Australia.

ABSTRACT: While direct to consumer health-related genetic testing (DTCGT) has potential to provide accessible genetic information and empower individuals to make informed healthcare decisions, it attracts concern associated with regulatory gaps, clinical utility and potential for harm. Understanding public reactions to DTCGT is vital to facilitate considered regulatory, health care and consumer protection strategies. Yet little is known, particularly outside the dominant US market, about how the general public view and might engage with DTCGT outside traditional health care systems. This paper addresses this knowledge gap with the first empirical study to investigate general public views across four countries, each at different stages of market development. US (n = 1000), UK (n = 1014), Japanese (n 

SUBMITTER: Charbonneau J 

PROVIDER: S-EPMC7029038 | biostudies-literature | 2020 Mar

REPOSITORIES: biostudies-literature