An international survey to inform priorities for new guidelines on von Willebrand disease.

ABSTRACT:

Introduction

von Willebrand disease (VWD) is an inherited bleeding disorder caused by a quantitative or qualitative dysfunction of von Willebrand factor. Clinicians, patients and other stakeholders have many questions about the diagnosis and management of the disease.

Aim

To identify topics of highest importance to stakeholders that could be addressed by guidelines to be developed by the American Society of Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), the National Hemophilia Foundation (NHF) and the World Federation of Hemophilia (WFH).

Methods

A survey to determine and prioritize topics to be addressed in the collaborative development of guidelines for VWD was distributed to international stakeholders including patients, caregiver

SUBMITTER: Kalot MA 

PROVIDER: S-EPMC7041556 | biostudies-literature | 2020 Jan

REPOSITORIES: biostudies-literature