Impact of severe polyhandicap cared for at home on French informal caregivers' burden: a cross-sectional study.

ABSTRACT:

Objectives

Polyhandicap (PLH), defined by a combination of profound intellectual impairment and serious motor deficits, is a severe condition with complex disabilities. In France, care of the large majority of PLH individuals is managed in specialised rehabilitation centres or residential facilities, but some of PLH individuals are cared for at home. The aims of this study were to assess the self-perceived burden among informal caregivers of PLH individuals and to identify potential determinants of this burden.

Design

Cross-sectional study (Neuropaediatric Department, Trousseau Hospital, Paris, France).

Settings

PLH children were recruited from a specialised paediatric/neurological department.

Participants

The selection criteria of caregivers were age above 18

SUBMITTER: Rousseau MC 

PROVIDER: S-EPMC7045096 | biostudies-literature | 2020 Feb

REPOSITORIES: biostudies-literature