Engaging Patients and Other Non-Researchers in Health Research: Defining Research Engagement.

ABSTRACT: With the increase in patient and consumer activism through the late twentieth century and into this century, patient roles in research evolved into a new model of research engagement, with patients serving as active advisors and co-leading or leading clinical research. By requiring active engagement of patients and other stakeholders, several government research funders have advanced this model, particularly in Canada, the United States (US), United Kingdom (UK), and Australia. A consortium of individuals from these countries formed a Multi-Stakeholder Engagement (MuSE) consortium to examine critical issues in engaged research, establish consensus on definitions, and provide guidance for the field, beginning with an overview of how to involve stakeholders in health research (Concannon et a

SUBMITTER: Frank L 

PROVIDER: S-EPMC7048327 | biostudies-literature | 2020 Jan

REPOSITORIES: biostudies-literature