Parent preferences for neurodevelopmental screening in the neonatal intensive care unit.

ABSTRACT:

Aim

To determine whether, and how, neonatal intensive care unit (NICU) parents want to receive early neurodevelopmental screening information about their child's future risk of cerebral palsy and other disabilities.

Method

This was a qualitative interview study. Parents of hospitalized infants born preterm completed semi-structured interviews. Data were analysed using a directed content analysis approach.

Results

Thematic saturation was achieved after 19 interviews. Four themes characterized parent perceptions of early neurodevelopmental screening: (1) acceptability: most parents were in favour of neurodevelopmental screening if parents could refuse; (2) disclosure of results: parents want emotional preparation for results, especially false positives; (3) emotional bu

SUBMITTER: Dorner RA 

PROVIDER: S-EPMC7056590 | biostudies-literature | 2020 Apr

REPOSITORIES: biostudies-literature