Unknown

Dataset Information

0

Exploring perceptions of consanguineous unions with women from an East London community: analysis of discussion groups.


ABSTRACT: Consanguineous unions are relationships between blood relatives. This study explores the perceptions of consanguineous unions and risk of childhood disability and illness through the reported views and experiences of women in an ethnically diverse London community. This qualitative study utilised group discussions to elicit women's views and experiences. Field notes were recorded by independent note-takers in four group discussions. Field notes were coded manually and independently by two researchers who identified common themes for thematic analysis. Thirty-six women attended, of whom 20 identified as Asian Pakistani. Identified themes included variation in participants' views of consanguineous unions and associated health risks, the value of informed decisions and preferences for information distribution. Although participants had diverse opinions and experiences, they considered risk awareness to be vital for encouraging informed decisions in younger generations. This study highlights the importance of involving the community in efforts to increase awareness around consanguineous unions and genetic risk, emphasising the need for enabling educated choices and the value of co-developing educational efforts with the community.

SUBMITTER: Cupp MA 

PROVIDER: S-EPMC7062959 | biostudies-literature | 2020 Apr

REPOSITORIES: biostudies-literature

altmetric image

Publications

Exploring perceptions of consanguineous unions with women from an East London community: analysis of discussion groups.

Cupp Meghan A MA   Adams Mary M   Heys Michelle M   Lakhanpaul Monica M   Alexander Emma C EC   Milner Yasmin Y   Huq Tausif T   Peachey Meradin M   Shah Lakmini L   Mirza Iram Shazia IS   Manikam Logan L  

Journal of community genetics 20190716 2


Consanguineous unions are relationships between blood relatives. This study explores the perceptions of consanguineous unions and risk of childhood disability and illness through the reported views and experiences of women in an ethnically diverse London community. This qualitative study utilised group discussions to elicit women's views and experiences. Field notes were recorded by independent note-takers in four group discussions. Field notes were coded manually and independently by two resear  ...[more]

Similar Datasets

| S-EPMC4846681 | biostudies-literature
| S-EPMC3507662 | biostudies-literature
| S-EPMC6583972 | biostudies-literature
| S-EPMC7597578 | biostudies-literature
| S-EPMC4366366 | biostudies-other
| S-EPMC10523268 | biostudies-literature
| S-EPMC4202018 | biostudies-literature
| S-EPMC4889600 | biostudies-literature
| S-EPMC3972242 | biostudies-literature
| S-EPMC11015186 | biostudies-literature