Generic preference-based health-related quality of life in children with neurodevelopmental disorders: a scoping review.

ABSTRACT:

Aim

To describe how generic preference-based health-related quality of life (HRQoL) instruments have been used in research involving children with neurodevelopmental disorders (NDD).

Method

A systematic search of nine databases identified studies that used generic preference-based HRQoL instruments in children with NDD. Data extracted following the Preferred Reporting Items for Systematic Review and Meta-Analyses extension for Scoping Review guidelines included type of NDD, instrument used, respondent type, justification, and critical appraisal for these selections.

Results

Thirty-six studies were identified: four cost-utility analyses; 15 HRQoL assessments; five economic burden studies; three intervention studies; and nine 'other'. The Health Utilities Index (Mark 2

SUBMITTER: Lamsal R 

PROVIDER: S-EPMC7065222 | biostudies-literature | 2020 Feb

REPOSITORIES: biostudies-literature