What hinders congenital ectopia lentis patients' follow-up visits? A qualitative study.

ABSTRACT:

Objectives

The aim of our study is to give insight into congenital ectopia lentis (CEL) patients' care-seeking behaviour and explore the factors affecting their follow-up visits.

Design

Cross-sectional study; in-depth and face-to-face semistructured interview.

Setting

A large-scale ophthalmology hospital in China.

Participants

35 patients with CEL and their parents from May 2017 to August 2017.

Main outcome measures

Themes and categories. The interviews were audio-recorded, transcribed verbatim, coded and analysed using grounded theory. Data collection was closed when new themes did not emerge in subsequent dialogues.

Results

The factors affecting the timely visits included insufficient awareness of CEL, shame on hereditary disease, lack of effect

SUBMITTER: Lin J 

PROVIDER: S-EPMC7069255 | biostudies-literature | 2020 Mar

REPOSITORIES: biostudies-literature