Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study.

ABSTRACT:

Background

Although international guidelines recommend discussions about goals of care and treatment options for children with severe and life-limiting conditions, there are still few structured models of paediatric advance care planning.

Aim

The study aimed at identifying key components of paediatric advance care planning through direct discussions with all involved parties.

Design

The study had a qualitative design with a participatory approach. Participants constituted an advisory board and took part in two transdisciplinary workshops. Data were collected in discussion and dialogue groups and analysed using content analysis.

Setting/participants

We included bereaved parents, health care providers and stakeholders of care networks.

Results

Key elements

SUBMITTER: Hein K 

PROVIDER: S-EPMC7074656 | biostudies-literature | 2020 Mar

REPOSITORIES: biostudies-literature