Patient Perspectives on Novel Treatments in Haemophilia: A Qualitative Study.

ABSTRACT:

Background and objective

New treatments for haemophilia are under development or entering the market, including extended half-life products, designer drugs and gene therapy, thereby increasing treatment options for haemophilia. It is currently unknown how people with haemophilia decide whether to switch to a new treatment. Therefore, the objective of this study was to explore what factors may play a role when Dutch patients and parents of boys with moderate or severe haemophilia make decisions about whether to switch to a different treatment, and how disease and treatment characteristics may affect these decisions. This may aid clinical teams in tailored information provision and shared decision making.

Methods

We conducted interviews among adults with moderately severe or s

SUBMITTER: van Balen EC 

PROVIDER: S-EPMC7075838 | biostudies-literature | 2020 Apr

REPOSITORIES: biostudies-literature