Newborn screening timeliness quality improvement initiative: Impact of national recommendations and data repository.

ABSTRACT:

Background

Newborn screening (NBS) aims to achieve early identification and treatment of affected infants prior to onset of symptoms. The timely completion of each step (i.e., specimen collection, transport, testing, result reporting), is critical for early diagnosis. Goals developed by the Secretary of Health and Human Services' Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) for NBS timeliness were adopted (time-critical results reported by five days of life, and non-time-critical results reported by day seven), and implemented into a multi-year quality improvement initiative (NewSTEPS 360) aimed to decrease the time to result reporting and intervention.

Methods

The NBS system from specimen collection through reporting of results was assessed (b

SUBMITTER: Sontag MK 

PROVIDER: S-EPMC7117765 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature